To my sad, grieving, just-past diagnosis self,
Life feels like a big black hole right now. You have fallen into the dark abyss you have been fearing for three months, ever since your sweet boy was born not breathing and the doctors hinted he might emerge with cerebral palsy.
You hoped for a miracle, but as more and more people shared their ‘miraculous recovery’ stories, the reality set in. There are disabled children in the world. Not everyone bounces back against all odds. Not everyone gets that happy ending.
You won’t get the happy ending you imagine. But that doesn’t mean you won’t be happy.
Grief is natural. By crying over the direction your life has gone and all the ways it’s going to be different from your dreams, you are not betraying your child. It’s true: he won’t be the person you imagined and he won’t have the life you dreamed of for him. It’s OK to feel sad for this. The park is where you go to walk around and escape the crying but it’s also where you grieve deeply. As you sit watching the other children play, it’s OK to feel sad for the things he will never do like chase the pigeons, splash in the paddling pool, beg for one more turn on the slide, scoot away too fast down the slope, join the junior football clubs. Just remember that it’s you you’re actually are feeling sad for. He will never know about the joys of these things, but neither will he ever realise what he’s missed. You need to mourn what you thought he would do, so that you can make space to accept the things he can.